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Substantial Matters: Life & Science of Parkinson’s


In Substantial Matters: Life & Science of Parkinson’s, host Dan Keller, PhD, interviews Parkinson’s experts to highlight treatments and techniques that can help you live a better life now, as well as research that can bring a better tomorrow. Episodes focus topics relevant to your daily life, including new levodopa delivery methods, exercise, clinical trials, nutrition and more! Learn more about our episodes and speakers at parkinson.org/Podcast. Follow and rate us on your favorite podcast platform to be notified when there’s a new episode! Let us know what other topics you would like us to cover by visiting parkinson.org/feedback.

Nov 14, 2023

Parkinson’s disease is a chronic and progressive disease that affects both the person with Parkinson’s and the care partner. Considerations need to be made to deal with the present challenges, while also anticipating future caregiving needs. Patsy Ponder Dalton was the caregiver for her husband, David, since he was diagnosed with Parkinson’s at the age of 44. Even after David’s passing, she is still a highly engaged facilitator for two Parkinson’s support groups in Missouri.

In this episode, she provides insight into dealing with the challenges of the disease as it progressed, along with the changes in her caregiving responsibilities. She discusses the dynamic of her and David’s shared decision making over time, provides suggestions for mitigating the physical challenges of the disease by adapting her home environment, and as a care partner, how Patsy needed to make time for her own well-being. Even though David is gone, she still finds comfort and motivation in being part of the Parkinson’s community and maintaining her role in support groups.